Int’l conference presses for law, awareness to ensure rights of special people
A two-day international conference on autism opened in Dhaka yesterday with a call for promoting legislative and policy actions to ensure quality healthcare for autistic people, especially the children.
The conference has brought together government leaders, policymakers, experts and activists from around the globe to discuss spreading awareness about autism in Bangladesh and other South Asian nations.
Autism is a lifelong neurological disability that affects how a person communicates with and relate to other people. It also affects how they make sense of the world around them.
Opening the conference as chief guest, Indian Congress party President Sonia Gandhi said it is unfortunate that the autistic persons in South Asian societies generally do not get the empathy they deserve.
“Too often we forget that nature’s unfairness to them results in a life wasted. The disabled, too, need not just food, education and shelter, but to be recognised as persons,” she observed.
Sonia said society should pay greater attention to autistic persons. “If society nurtures them, it will get back much in return.”
She said, “There is much of it [autism] that we still do not understand. Science itself in the seven decades of research has not found clear answers or explanations for its causes.”
Sonia, also chairperson of India’s ruling United Progressive Alliance, noted that prevalence of autism is widespread and today it is believed that nearly one person out of every hundred is afflicted with autism.
In India alone, she added, 8 million individuals are estimated to have autism spectrum conditions.
She stressed the need for civil society’s participation in shaping and sensitising opinion as well as providing quality care and services to autistic people.
Prime Minister Sheikh Hasina, who addressed the conference as special guest, emphasised establishing the rights of the challenged people in the developing countries.
“It is necessary to create social and legal frameworks to mitigate sufferings of the challenged people, protect their rights, and promote their causes,” she said adding that in most of the developing countries, the rights of those challenged are rarely recognised, and seldom met.
She pointed out that dangers such as social stigma, misinformation and a lack of experts and treatment centres limit the quality of support available to these families.
Therefore, she continued, necessary social and legal frameworks should be created and infrastructures built to lessen their sufferings, protect their rights and promote their causes.
“Challenges faced by families living in poverty are already immeasurable; it is even more challenging when that child has a complex disability such as autism,” Hasina said.
She mentioned that identification of a disability and appropriate interventions within the first year of a child’s life are particularly important when it comes to meeting the challenges of neuro-developmental disorders such as autism.
The prime minister called upon all to work in cooperation with one another so that as a region “we can develop scientifically sound practices, which are socially applicable and economically feasible”.
Arranged on the theme “Autism Spectrum Disorders and Developmental Disabilities in Bangladesh and South Asia”, the conference adopted a 7-point Dhaka Declaration at its opening session.
It also appealed to the donors to pay attention to the unmet needs of millions of people affected by autism and financially support the programmes planned to improve care and services.
Global research and advocacy forum Autism Speaks organised the conference in collaboration with the government of Bangladesh, Bangabandhu Sheikh Mujib Medical University and World Health Organization (WHO).
Bangladesh does not have specific data on those affected by autism but officials estimate that around 150,000 children may be classified as autistic.
Health Minister Dr AFM Ruhal Haque said the government will carry out a special census to determine the number of the autistic persons.
At the conference, it was stated that the number of autistic people in the world is increasing at a rate ranging from 10% to 17%. The exact number of autistic people is not available, but the experts claimed it would be tens of millions.
The inaugural function was addressed, among others, by Sri Lankan first lady Shiranthi Wickramasingha Rajapaksa, Maldives vice-president’s wife Ilham Hussain, Foreign Minister Dipu Moni, Health Minister AFM Ruhal Haque, Indonesian Health Minister Endang Rahayu Sedyaningsih, Bhutanese Health Minister Lyonpo Zangley Dukpa, Andy Shis of Global Autism Public Health Initiative, Shekhar Saxena of WHO, Aysha Saif Mohammad Hamadan Ali of UAE and Belal Al Nezami of Jordan.
Hasina’s daughter Saima Hossain, an autism activist and an organiser of the conference, was also present.
A cultural programme styled “The Land That I Love” was presented by the national cultural team of children with autism.
Earlier in the day, Sonia Gandhi placed wreaths at National Mausoleum at Savar paying tribute to the independence martyrs. She also placed wreaths at the mural of Bangabandhu Sheikh Mujibur Rahman at Bangabandhu Memorial Museum at Dhanmondi.
The Congress chief met Hasina after inaugurating the conference.
She called on President Zillur Rahman at Bangabhaban after the special ceremony in which she received Bangladesh Freedom Honour on behalf of her slain mother-in-law Indira Gandhi.
-With The Daily Star input
